What to expect when transitioning from child to adult care
It is important to ask your physician (paediatrician) to help identify an adult doctor, one that has knowledge of autoinflammatory diseases and is local to where the affected person lives. Another way to ensure a smooth transition into adult care is to find a joint (paediatric and adult) consultant, this will allow for adhesion within the transition of care programme.
When managing the transition into adult care, it is recommended that adult physicians monitor the situation carefully and allow frequent availability and support.
Understanding adolescent care needs
Teenagers can often leave their transition of care plan to the last minute, when a true emergency takes place. Adult doctors need to be flexible and, where possible, allow more time during appointments to enable opportunities of increased exchanges with teens and young adults.
The physicians should also make sure that all information is passed over to a person’s new physician so they have the full medical history on file and can offer a person the right treatment and advice during the transition into adult care.