What are the common challenges faced by health professionals when communicating with young people and their families affected by autoinflammatory conditions? What can be done to help?
Posted on: April 26, 2017

Common challenges for young people and their HCPs
A common challenge faced by health professionals is the episodic character of rare autoinflammatory diseases. People with rare autoinflammatory conditions need to be able to effectively communicate their attacks to their physician or healthcare professional for accurate assessment and diagnosis.

Understanding patient needs
Physicians understand that it is crucial for patients to have time with their physician or healthcare professional, so they are properly understood and subsequently offered the right care options.

If you are facing a challenging time, you don’t have to go it alone. Support groups can offer help by putting you in contact with people facing similar challenges. They also offer an opportunity to share experiences and advice, and can be easily accessed online. RareConnect is a great resource which connects patients globally, more information about RareConnect here https://www.rareconnect.org/