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Rare Disease Policies EU

EU Countries’ National Rare Disease Plans

Austria

Ministry of Health Report on Rare Diseases in Austria (2012) – german (d)

Austrian National Action Plan for Rare Disease – german (d)

Austrian National action plan for rare diseases (2014- 2018)_Executive Summary- english (en)

Austrian National action plan for rare diseases (2014- 2018)_Executive Summary- german (d)

Austrian National Action Plan for Rare Disease 2014-2018 (in English – unofficial version by EUROPLAN)

Belgium

Recommendations and Proposed Measures for a Belgian Plan for Rare Diseases_Phase I – english (en)

Recommendations and Proposed Measures for a Belgian Plan for Rare Diseases_Final report – english (en)

Belgian Plan for Rare Diseases 2013 – french (fr)

Belgian Plan for Rare Diseases 2013 – dutch (nl)

Recommendations and Proposed Measures for a Belgian Plan for Rare Diseases_Phase I – french (fr)

Bulgaria

National Plan on Rare Diseases 2009-2013 (2010) – unofficial english version (en)

National Plan on Rare Diseases 2009-2013 (2010) – bulgarian (bg)

Croatia

Croatian National Programme for Rare Diseases 2015–2020 – croatian (hr)

Croatian National Programme for Rare Diseases 2015–2020 – eng (en) [unofficial version by EUROPLAN]

Cyprus

Cyprus Strategic Plan for Rare Diseases (2012) – greek (gr)

Czech Republic

Czech National Strategy for Rare Diseases: 2010-2020 Press release – czech (cz)

Czech National Strategy for Rare Diseases: 2010-2020 Press release – english (en)

Czech National Action Plan for Rare Diseases 2012-2014 – czech (cz)

Czech National Action Plan for Rare Diseases 2012-2014 – english (en)

Second Czech National Action Plan for Rare Diseases 2015-2017 – czech (cz)

Second Czech National Action Plan for rare diseases 2015-2017 – unofficial english version (en)

Second Czech National Action Plan for rare diseases 2015-2017 – Annex 1 – unofficial english version (en)

Denmark

Danish National Strategy for Rare Diseases – danish (dk)

Finland

The finnish national programme for rare diseases_ finnish (fi)

The finnish national programme for rare diseases_ eng (en) [unofficial version by EUROPLAN]

France

French National Plan on Rare Diseases (2005-2008) – french (fr)

French National Plan on Rare Diseases (2005-2008) – english (en)

French National Plan on Rare Diseases (2010-2014) – french (fr)

Germany

Measures to improve the health situation of persons with rare diseases in Germany – german (d)

German National Plan of Action for People with Rare Diseases 2013 – german (d)

German National Plan of Action for People with Rare Diseases 2013 – english (en)

Greece

Greek National Plan on Rare Diseases 2008-2012 – greek (gr)

Hungary

National Plan for Rare Diseases – english (en)

Ireland

National Rare Disease Plan for Ireland 2014-2018 – english (en)

Report of the Consultation for a National Rare Disease Plan for Ireland – english (en)

Italy

Italian National Plan for Rare Diseases 2013-2016 – italian (it)

Italian National Plan for Rare Diseases 2013-2016 – eng (en) [unofficial version by EUROPLAN]

Latvia

Latvian Rare Disease Plan 2013-2015 – latvian (lv)

Lithuania

National plan on activities related to rare diseases – lithuanian (lt)

Luxembourg

Rare diseases: Survey on the situation of people with rare diseases in the Grand Duchy of Luxembourg 2011 – french (fr)

Netherlands

Project of National Plan for Rare Diseases – dutch (nl)

Strategy of The Netherlands in the field of Rare Diseases – english (en)

Dutch National Plan for Rare Diseases – dutch (nl)

Dutch National Plan for Rare Diseases – eng (en) [unofficial version by EUROPLAN]

Norway

A Rare Guide: Information on the Norwegian programme for persons with rare conditions (produced by the National Directorate for Health) – nerwegian (no)

Portugal

National Programme for Rare Diseases 2008-2015 – portuguese (p)

Romania

Romanian National Plan for Rare Diseases 2010-2014 (Draft) – romanian (r)

Romanian National Plan for Rare Diseases 2010-2014 (Draft) – english (en)

Slovakia

Slovak National Strategy for the Development of Health Care for Patients with Rare Diseases 2012-2013 – slovak (sk)

Slovak National Strategy for the Development of Health Care for Patients with Rare Diseases 2012-2013 – english (en)

Slovenia

Work Plan for the Field of Rare Diseases in the Republic of Slovenia – slovene (sl)

Work Plan for the Field of Rare Diseases in the Republic of Slovenia – english (en)

Spain

Rare Diseases Strategy of the National Health System – Update 2014 – spanish (e)

Spanish Rare Diseases Strategy of the National Health System 2009 – spanish (e)

Spanish Rare Diseases Strategy of the National Health System 2009 – english (en)

Switzerland

National Concept on Rare Diseases 2014- french (fr)

National Concept on Rare Diseases 2014- german (d)

Implementation measures of the National Concept on Rare Diseases_2015_french (fr)

Implementation measures of the National Concept on Rare Diseases_2015_german (g)

United Kingdom

UK Strategy for Rare Diseases 2013 – english (en)

Consultation on the United Kingdom Plan for Rare Diseases – english (en)

Equality Analysis: UK Planfor Rare Diseases – english(en)

It’s Not Rare to Have a Rare Disease – The Implementation Plan for Rare Diseases in Scotland – english(en)

Welsh Implementation Plan for Rare Diseases _english (en)

The Northern Ireland Implementation Plan for Rare Diseases 2015_english (en)

Thanks to europlanproject.eu

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